{"id":57183,"date":"2012-05-23T20:36:09","date_gmt":"2012-05-23T18:36:09","guid":{"rendered":"https:\/\/laindependent.cat\/les-malalties-invisibles\/"},"modified":"2012-05-23T20:36:09","modified_gmt":"2012-05-23T18:36:09","slug":"les-malalties-invisibles","status":"publish","type":"post","link":"https:\/\/laindependent.cat\/es\/les-malalties-invisibles\/","title":{"rendered":"Les malalties invisibles"},"content":{"rendered":"

A Catalunya es calcula que, aproximadament, 220.000 persones podrien patir FM i 30. 000 la SFC, en total serien unes 250.000 les afectades de les quals quasi el 80% serien dones.<\/span><\/strong><\/p>\n


<\/b><\/span><\/p>\n

12 de maig dia de la S\u00edndrome de fatiga cr\u00f2nica \u2013Encefalomielitis mi\u00e0lgica (SFC-EM) i la Fibromi\u00e0lgia. La resta de l’any malalties invisibles<\/span><\/strong><\/p>\n

Al voltant del 12 de maig, al igual que en anys anteriors, s’han celebrat diferents actes per donar a con\u00e8ixer els avan\u00e7os en la lluita contra La S\u00edndrome de Fatiga Cr\u00f2nica-Encefalomielitis Mi\u00e0lgica (SFC-EM) i la Fibromi\u00e0lgia (FM).<\/span><\/p>\n

Aquestes malalties, conjuntament amb la S\u00edndrome de Sensibilitat Qu\u00edmica M\u00faltiple (SSQM) s\u00f3n malalties cr\u00f2niques que afecten de forma greu a la salut i la qualitat de vida de les persones que les pateixen, sense que tinguin durant molt de temps un diagn\u00f2stic clar de que els passa, i poden arribar a ser molt invalidants.<\/span><\/p>\n

<\/p>\n

\"pau_diaz\"
Pau D\u00edaz<\/figcaption><\/figure><\/strong><\/p>\n

S\u00f3n malalties sovint invisibilitzades, perqu\u00e8 la majoria de la classe m\u00e8dica en el nostre pa\u00eds no es creu el seu car\u00e0cter org\u00e0nic i en molts casos remeten a trastorns psicosom\u00e0tics de les persones que les pateixen. Possiblement, aquesta desconfian\u00e7a de la classe m\u00e8dica envers les persones malaltes, tingui molt a veure amb que La SFC-EM i la FM afecten molt majorit\u00e0riament a les dones, com ho demostren diferents estudis sobre brots de la malaltia en diferents d\u00e8cades i llocs geogr\u00e0fics i a imaginaris negatius respecte a les dones i les seves “suposades neures”. Recordo un psiquiatra que, fa anys, em deia que a aquesta malaltia abans si li deia neurast\u00e8nia. I aix\u00f2 succeeix malgrat que la SFC-EM est\u00e0 classificada des de l’any 1969 com una malaltia del sistema nervi\u00f3s per la Organitzaci\u00f3 Mundial de la Salut (OMS), amb el codi G93.3 a la Classificaci\u00f3 de Malalties-10 (CIE-10). La Fibromi\u00e0lgia est\u00e0 reconeguda per l’OMS des de 1992. Avui hi ha m\u00e9s de 5.000 treballs cient\u00edfics que demostren inequ\u00edvocament que la SFC-EM no es tracta d’un trastorn de somatitzaci\u00f3 i que mostren que \u00e9s un complex trastorn neuroimmunol\u00f2gic que afecta cada un dels principals sistemes de recuperaci\u00f3.<\/span><\/p>\n

Actualment hi ha un ampli acord dins de la comunitat cient\u00edfica de quins poden ser els desencadenants de la SFC-EM. Aquesta es desenvoluparia a trav\u00e9s de determinats virus, estr\u00e9s i t\u00f2xics en persones amb una predisposici\u00f3 gen\u00e8tica que facilitaria que els seus sistemes immunol\u00f2gic i neurol\u00f2gic (i en molts casos tamb\u00e9 l’endocr\u00ed i el cardiovascular), s’espatllen. Una simple infecci\u00f3 viral en una persona amb predisposici\u00f3 a la SFC-EM pot ser el desencadenat. Els sistemes immunol\u00f2gic i neurol\u00f2gic no s\u00f3n capa\u00e7os de resoldre la “agressi\u00f3” d’un senzill virus o t\u00f2xic, i comencen a funcionar malament, causant tots els variats i forts s\u00edmptomes de la malaltia.<\/span><\/p>\n

Confirmant el car\u00e0cter org\u00e0nic d’aquestes malalties i la seva major incid\u00e8ncia sobre les dones, segons el Col\u00b7lectiu Ronda (2008) “a mitjans dels 80 es detecta arreu del m\u00f3n un perfil de pacient, majorit\u00e0riament femen\u00ed, que despr\u00e9s d’una infecci\u00f3 v\u00edrica com mononucleosi (virus Epstein Barr) o un cap\u00edtol traum\u00e0tic, entre d’altres, se sent abatut, adolorit i amb el son i l’humor alterats”.<\/span><\/p>\n

La SFC-EM i la FM s\u00f3n dues malalties diferents per\u00f2 que tenen importants coincid\u00e8ncies, com el fet de que les dues s\u00f3n s\u00edndromes de “sensibilitzaci\u00f3 central” amb hip\u00f2xia cel\u00b7lular (no arriba suficient oxigen a les c\u00e8l\u00b7lules), disfunci\u00f3 mitocondrial i exc\u00e9s d’\u00f2xid n\u00edtric. En totes dues malalties es manifesta la fatiga i el dolor com a s\u00edmptomes importants i en el cas de la SFC-EM es don\u00e0 una gran afectaci\u00f3 immunol\u00f2gica (Klimas N O’Brian A 2007). A m\u00e9s, en un nombre importat de pacients aquestes malalties es solapen.<\/span><\/p>\n

S\u00f3n malalties amb una prevalen\u00e7a prou important, entre un 2,4 i un 4% la FM, i entre un 0,4 i un 0,6 la SFC del total de la poblaci\u00f3. A Catalunya es calcula que, aproximadament, 220.000 persones podrien patir FM i 30. 000 la SFC, en total serien unes 250.000 les afectades de les quals quasi el 80% serien dones.<\/span><\/p>\n

El desconeixement m\u00e8dic, que en molts casos ha comportat diagn\u00f2stics erronis, i el no reconeixement de lo invalidant que poden ser aquestes malalties, ha portat a la desesperaci\u00f3 a moltes de les persones afectades. Durant els \u00faltims anys s’han produ\u00eft casos dram\u00e0tics, que han sortir a la llum p\u00fablica, com el del jove Fabi\u00e1n <\/strong>de Barcelona, a l’any 2009, que malat de fibromi\u00e0lgia i davant la desesperaci\u00f3 pel dolor i la incomprensi\u00f3 va decidir treure’s la vida. Fabi\u00e1n<\/strong> iniciava el seu comiat en YouTube amb aquestes paraules “No m’he su\u00efcidat, m’ha matat la fibromi\u00e0lgia”. Posteriorment, Eva M\u00aa Alabau<\/strong>, valenciana, mare de dos fills, amb fibromi\u00e0lgia i amb una forta depressi\u00f3 realitzava una vaga de fam despr\u00e9s de que la Seguretat Social li denegu\u00e9s la pensi\u00f3 d’incapacitat. Ella deia, “l’\u00fanic que s\u00e9 es que no puc treballar, no puc portar un sou a casa per mantenir als meus fills”. Van ser aquests dos casos extrems, dram\u00e0tics, que poden donar fe de la situaci\u00f3 que cont\u00ednuament denuncien les organitzacions d’afectades i afectats, tamb\u00e9 aqu\u00ed a Catalunya, la incomprensi\u00f3 i la falta de sensibilitat de les autoritats sanit\u00e0ries, entre elles els i les responsables de les avaluacions del ICAM, davant d’aquestes malalties.<\/span><\/p>\n

Per aix\u00f2, les associacions de persones afectades de SFC-EM i FM saben que la seva lluita, primer per la visibilitzaci\u00f3 i reconeixement de la malaltia i segon perqu\u00e8 es destinin diners i recursos a la seva investigaci\u00f3 i a la atenci\u00f3 de les persones malaltes, no \u00e9s nom\u00e9s cada dia 12 de maig, sin\u00f3 durant tot l’any.<\/span><\/p>\n

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\u00a0<\/span><\/p>\n

(Bibliografia: COL\u00b7LECTIU RONDA (2008) Les Malalties invisibles. Fibromi\u00e0lgia, Fatiga Cr\u00f2nica… Barcelona. Editorial Ara Idees S.C.C.L.; Klimas N O’Brian A (2007). Chronic Fatigue Syndrome: Infammation, Immune Function, and Neuroendocrine Interactions, CurrentRheumatology Reports 2007, 9:482-48; VALVERDE, C. 2009. Pues tienes buena cara. S\u00edndrome de la Fatiga Cr\u00f3nica. Una enfermedad pol\u00edticamente incorrecta. Madrid. Ediciones Martinez Roca;<\/span><\/p>\n

P\u00e0gines web: Associaci\u00f3 Catalana d’Afectats per la S\u00edndrome de Fatiga Cr\u00f2nica Encefalomielitis Mi\u00e0lgica ; <\/a>Asociaci\u00f3n de Sanitarios al Servicio de la Encefalitis Mialgica<\/a> ; Liga Plataforma de acci\u00f3n en favor de los afectados por el SFC<\/a> )<\/span>
<\/span><\/p>\n

\u00a0<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

A Catalunya es calcula que, aproximadament, 220.000 persones podrien patir FM i 30. 000 la SFC, en total serien unes 250.000 les afectades de les quals quasi el 80% serien dones. 12 de maig dia de la S\u00edndrome de fatiga […]<\/p>\n","protected":false},"author":72,"featured_media":27801,"comment_status":"open","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[26467],"tags":[],"class_list":["post-57183","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-salut-sexual"],"yoast_head":"\nLes malalties invisibles | La Independent<\/title>\n<meta name=\"description\" content=\"A Catalunya es calcula que, aproximadament, 220.000 persones podrien patir FM i 30. 000 la SFC, en total serien unes 250.000 les afectades de les quals\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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