{"id":54745,"date":"2011-05-10T15:09:26","date_gmt":"2011-05-10T13:09:26","guid":{"rendered":"https:\/\/laindependent.cat\/el-dijous-12-de-maig-es-commemora-el-dia-mundial-contra-la-fibromialgia-i-la-sindrome-de-fatiga-cronica\/"},"modified":"2011-05-10T15:09:26","modified_gmt":"2011-05-10T13:09:26","slug":"el-dijous-12-de-maig-es-commemora-el-dia-mundial-contra-la-fibromialgia-i-la-sindrome-de-fatiga-cronica","status":"publish","type":"post","link":"https:\/\/laindependent.cat\/en\/el-dijous-12-de-maig-es-commemora-el-dia-mundial-contra-la-fibromialgia-i-la-sindrome-de-fatiga-cronica\/","title":{"rendered":"El dijous 12 de maig es commemora el Dia Mundial contra la Fibromi\u00e0lgia i la S\u00edndrome de Fatiga cr\u00f2nica"},"content":{"rendered":"<p style=\"text-align: left;\"><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">Milers de persones pateixen fibromi\u00e0lgia arreu del m\u00f3n, per\u00f2 no va ser fins l\u2019any 1992 quan aquesta malaltia va ser reconeguda per l\u2019Organitzaci\u00f3 Mundial de la Salut. La fibromi\u00e0lgia \u00e9s una malaltia cr\u00f2nica que es caracteritza pel dolor cr\u00f2nic generalitzat, no articular, i sensaci\u00f3 dolorosa a la pressi\u00f3 d\u2019uns punts sensibles espec\u00edfics en els m\u00fasculs i els raquis. El dolor pot ser com cremor, punxades, pesantor, rigidesa del cos, cansament o formigueig extrem. Actualment, no existeix cura.<\/span><\/p>\n<p><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">\u00a0<\/span><\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\"><\/span><\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">A Catalunya, hi ha un gran nombre de persones afectades, majorit\u00e0riament dones, que cerquen informaci\u00f3 sobre la seva malaltia a trav\u00e9s de <a href=\"http:\/\/www.fibromialgia-cat.org\/cat\/frames.htm\">l&#8217;Associaci\u00f3 Catalana d&#8217;Afectats de Fibromi\u00e0lgia <\/a>(ACAF) i de la <a href=\"http:\/\/www.fundacionfatiga.org\">Fundaci\u00f3 per a la Fibromi\u00e0lgia i la S\u00edndrome de Fatiga cr\u00f2nica<\/a>. Precisament, aquesta fundaci\u00f3 \u00e9s l\u2019organitzadora dijous, 12 de maig, de la jornada \u201cTemps de canvis\u201d, a les 10 hores, a la sala d\u2019actes del Col\u00b7legi Oficial de Metges de Barcelona (passeig de la Bonanova, 47). En aquest acte hi participaran la presidenta de la Fundaci\u00f3 i Dra. <strong>Anna Maria Cusc\u00f3<\/strong>, el Dr. <strong>Joaquim Fern\u00e1ndez <\/strong>i el Dr. <strong>Ferran J. Garc\u00eda<\/strong>. Moderar\u00e0 la taula rodona <strong>N\u00faria Ojeda<\/strong>, afectada de S\u00edndrome de Fatiga cr\u00f2nica. L\u2019entrada \u00e9s lliure.<\/span><\/p>\n<p><!--more--><\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">\u00a0<\/span><\/p>\n<p>{youtube}HBXgY6QU5kY{\/youtube}<\/p>\n<p><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">\u00a0<\/span> <\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">\u00a0<\/span><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">\u00a0<\/span><\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">\u00a0<\/span><\/p>\n<p style=\"text-align: left;\">\u00a0<\/p>\n<p><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\"><\/p>\n<p style=\"text-align: left;\">Segons les dades de la Societat Espanyola de Reumatologia (SER), 4,2% de les dones espanyoles conviuen amb el dolor persistent, la dificultat per dormir i el maldecap. Per explicar una mica millor com pateixen les dones malaltes de fibromi\u00e0lgia, <strong>B\u00e1rbara Boyero<\/strong> juntament amb <strong>Roser Mateos<\/strong> i <strong>Lidia Ruiz <\/strong>han realitzat el treball audiovisual \u2018Indefinida Plural\u2019, documental que planteja diverses preguntes com: \u00e9s obligatori tenir cura dels altres si ets dona? Nom\u00e9s els hi passa aix\u00f2 a les dones que tenen fibromi\u00e0lgia? Les autores volen tencar amb els l\u00edmits de la normalitat assumida a trav\u00e9s de la viv\u00e8ncia de tres dones malaltes de fibromi\u00e0lgia que parles de la seva situaci\u00f3. Es tracta d\u2019una reflexi\u00f3 sobre la realci\u00f3 social, hist\u00f2ria i cultural de les dones amb la salud, el dolor, la culpa, les ren\u00fancies, etc.<\/p>\n<p style=\"text-align: left;\">\u00a0<\/p>\n<p style=\"text-align: left;\"><img fetchpriority=\"high\" decoding=\"async\" class=\" size-full wp-image-26759\" src=\"https:\/\/laindependent.cat\/wp-content\/uploads\/2011\/05\/esquena_foto_ok.jpg\" alt=\"esquena_foto_ok\" style=\"display: block; margin: 7px auto;\" height=\"225\" width=\"300\" \/><\/p>\n<p style=\"text-align: left;\">\u00a0<\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">\u201cNo volia fer un documental sobre la fibromi\u00e0lgia, sin\u00f3 descobrir com la defineixen les persones que la pateixen\u201d, explica Boyero. En aquesta obra es contemplen diversos aspectos com el pas de la cuidadora a ser persona cuidada, i la reacci\u00f3 del seu entor; la culpabilitat, el maltracte m\u00e8dic, familiar i social, o el constant q\u00fcestionament que pateixen. Aix\u00f2 darrer era primordial per a les creadores: \u201cNo vol\u00edem generar un q\u00fcestionament encara major. El que busc\u00e0vem era l\u2019acceptaci\u00f3 social\u201d.<\/span><\/p>\n<p style=\"text-align: left;\"><span style=\"font-size: 10pt; font-family: trebuchet ms,geneva;\">En el desenvolupament del documental, les difer\u00e8ncies entre les dones que pateixen fibromi\u00e0lgia i les que no es van anar difuminant: \u201cTotes viur\u00edem millor en una societat que ens escolt\u00e9s i que ens eduqu\u00e9s en la igualtat\u201d, asegura Boyero. \u2018Indefinida Plural\u2019 busca que moltes dones es vegin reflectides, se sentin representades, \u201cfet molt important per a les persones que viuen q\u00fcestionades\u201d. Tamb\u00e9 pret\u00e9n que qui pate\u00e9is fibromi\u00e0lgia reflexioni, que passi pel que va passar Boyero quan filmava: \u201cAquest documental em va remoure molt a nivell personal\u201d.<\/span><\/p>\n<p><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Milers de persones pateixen fibromi\u00e0lgia arreu del m\u00f3n, per\u00f2 no va ser fins l\u2019any 1992 quan aquesta malaltia va ser reconeguda per l\u2019Organitzaci\u00f3 Mundial de la Salut. La fibromi\u00e0lgia \u00e9s una malaltia cr\u00f2nica que es caracteritza pel dolor cr\u00f2nic generalitzat, [&hellip;]<\/p>\n","protected":false},"author":77,"featured_media":26758,"comment_status":"open","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[26467],"tags":[],"class_list":["post-54745","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-salut-sexual"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>El dijous 12 de maig es commemora el Dia Mundial contra la Fibromi\u00e0lgia i la S\u00edndrome de Fatiga cr\u00f2nica | La Independent<\/title>\n<meta name=\"description\" content=\"Milers de persones pateixen fibromi\u00e0lgia arreu del m\u00f3n, per\u00f2 no va ser fins l\u2019any 1992 quan aquesta malaltia va ser reconeguda per l\u2019Organitzaci\u00f3 Mundial\" \/>\n<meta name=\"robots\" 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